Update :- 28th Aug
Spoke to Legal Laura and have received an email with preparation details etc. Must find out what the technical issues are.

Update :- 27th Aug
I have called Legal Laura (Derriford) and have been they will provide a microscope so I can view the slides at the Legal Dept. Si I will see if a) I can get Shelly to come and b) if I can get a camera shot of the slides. For the second option I will email Laura to find out the make and model of the microscope. I will also ask for the parameters that were use in preparing the slides. -:- 20:30 Spoke to Shelly and will see her Saturday maybe.

9th July
It becoming difficult to write up what is happening as the larger part of my investigations reveal a complete lack of understanding or support of my being.
Most of the health professionals either blatantly bully me into trying to accept their advice or exaggerate their views so much that they are in essence lying to maintain their status of authority and try to undermine my efforts to understand what is happening with my body by claiming they are the experts and I couldn't understand.

A few examples are:
Bullying: Using the word 'we' or 'us' to persuade me that I should do what 'we' want or that which is good for 'us'. They try to maintain their position of authority at any cost. So someone who questions them is given short shrift. I am advised to do want is conventional and there is little room to consider other options. What other options there are, are either not used, not available or unknown to the 'professionals'

It has taken me 3 months to get a cytology test, that wasn't offered, even though they knew I didn't want cystoscopy. Although I told my GP I didn't want cystoscopy, it's likely she didn't transfer that to the urologist so I was expected to conform. When I didn't 'they' twist what was said to focus on that I didn't accept their offering: when I shouldn't have been put in the position to reject something I had already said I didn't want. - No further action was their summary.

So three months later I have the cystoscopy results which indicate transition cell carcinoma. That it may have been more evident or worse three months ago we will never know, but I would like to continue my investigations and have another cystoscopy in 10 weeks, for example.

I am aware that they may refuse as I am not playing ball. So I have investigated the possibility of doing it myself.

I also want to see the slides myself and in doing so will learn about what I am looking at, and thence could analyse my own samples.

To this end I have contacted the Legal Dept. to access the slide and the Cytology Dept. for some explanation.

I now know that the Cytology dept. only prepared the slides which were then passed to a consultant.

On questioning the cytology dept. about doing my own analysis I was told I would be wasting thousands of pounds on a good microscope as I wouldn't know what I was looking at. Once I found a suitable source for the scope I spoke again to cytology and to the consultant and received much the same response. However the consultant neil.roberston@phnt.swets.nhs.uk 01752 792359 was helpful in explaining a bit.

Neil Robertson explained that cells and blood were dislodged on passing urine due to trauma and that the cancer cells were groups as they were parts of an intrusion in the flow, whereas normal debris were single cells from the smoother inner layer of transitional cells.

On further queries made at the Cytolgy dept., during a visit I was told that another reason I could not do it myself is that the urine would have to centrifuged and that the minimal cost of that would be £6000.

Those who were reluctant to sell me a microscope thinking I wouldn't be able to suss things also said I couldn't source a centrifuge as the vendors wouldn't sell to an individual. However I have since sourced one for under £200.

So my next step is to Dr M and ask for information on

1. Access to my slides
2. A proper description of what was actually seen
3. Another cytology test in 10 weeks
4. How the centrifuge is done, what G force ( 0.000001118 x r x s² )
   Where r is the radius in millimetres and s is the rotational speed in rpm
   instructables.com
5. How is the sample extracted etc
6. Can the urine just be filtered?
7. Find other visual examples of TCC

Exageration:

Key to data

Blood: Cells/µL

• N = none, L = less than, M = more than, D = see diary
• Haemolysis: ± = >10, + = >25, ++ = >80, +++ = >200
• Non-haemolysis: * = <10, ** = <50

Date, Time, Mark	Date, Time, Mark	Date, Time, Mark
01 July 07:14,N	02 July 08:30,ND	03 July 07:48,N
04 July 05:49,N	05 July 06:44,N	05 July 19:09,ND
06 July 08:58,N	07 July 01:32,ND	07 July 08:07,ND
07 July 13:34,L+++D	08 July 08:54,+D	08 July 12:21,ND
09 July 04:50,N	09 July 12:34,±D	09 July 23:57,ND
10 July 09:33,L±D	10 July 16:18,L+D	11 July 07:36,N
12 July 16:16,L&++D	13 July 12:36,L+D	14 July 13:26,±
15 July 08:07,±	16 July 12:36,N	17 July 01:26,N
18 July 09:07,N	19 July 08:30,N	20 July 07:50,N
21 July 07:09,N	22 July 08:09,ND	23 July 11:14,ND
24 July 16:50,ND	25 July 19:30,++D	26 July 19:30,N
27 July 11.54,L*D	28 July 08:15,*	29 July 09:30,N
30 July 08:39,N	31 July 09:36,N

This month will be a defining month. Initially I have to persuade the professionals and family that I am on the case. This will be helped if by the end of the month there is no more bleeding. If the twinges go away that would signal another level of healing.
This month so far -:- 21st July

1. Last visit to the G.P. (17th July)
   Dr M wouldn't agree to me having another cytology test in a month or two. She said she knows enough and a cystoscopy would be the only definitive test. I did get the cytology results which I will comment on elsewhere
2. Aches and twinges
   I've had aches in the area of the left ureter or kidney since 7th July. For the last week they have been rather weak but noticeable on occasion. It does tend to make me consider stones. The 'twinges' have all but gone and I can hardly remember having any for weeks.
3. DIY cytology requires:-
   -:- Obtaining the slides from the last 'official' test;
   -:- Querying the process used in test;
   -:- Buying the microscope and paraphernalia;
   -:- Setting up a 'lab';
   -:- Waiting to ensure things have settled a bit so I don't feel I'm rushing things.
   -:- Buying a centrifuge;
   -:- Replicating the test

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